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Digital inclusion in health and care

A recent collaboration has addressed digital inclusion in health and care.

Digital inclusion framework


  • Video transcript

    [Mike, Workshop Attendee holds phone. He looks at the NHS app on his mobile phone.]

    Mike: There we go. We've got help.

    [On screen name caption: Kath Sykes – NHS Sussex]

    Kath Sykes: There’s massive digital transformation in the NHS, and it really will support people to self-manage their health in a way that we would just not be able to do face to face. As an example, you know, people can have access to apps that provide them with information that could prevent them from needing to see a GP, help them manage long term conditions, as well as access health and care services.

    [Mike, workshop attendee, uses NHS app to order a prescription on his mobile phone]

    Mike: All done in just a few minutes sitting in the living room.

    [On screen caption: Mike, workshop attendee]

    Mike: If the NHS is going to roll this technology out, it does need to think about how it makes it robust for users who are not tech savvy. I haven't grown up with this technology, I use it, but I wouldn't have been able to download that the app without my daughter's help.

    Kath Sykes: So we know that 40% of adults over 75 are digitally excluded. We know that one in 20 households in the UK don't have internet access, or will struggle to afford internet access. So the digital inclusion framework is important because it enables us really to think about the impact on that person, whether they're being excluded, whether we're introducing health inequalities, and make them much more inclusive for people.

    [On screen caption: Maja Golf-Papez – Univeristy of Sussex]

    Maja Golf-Papez: So this is the framework that can be used as a thinking tool that helps us to better understand what are some potential barriers to people being included in the healthcare technologists services. And we can use this framework to first ensure that we design digital health and care pathways in an inclusive way and also assess current pathways, whether they are inclusive or not.

    [Doctor on video call]

    Doctor: Hi, there. Hi, Rachel. Hi, Richard, how you doing? Good. How are you?

    [On screen caption: Debbie Keeling – University of Sussex]

    Debbie Keeling: In terms of what we wanted to achieve, there were two stages, the very first stage was that we realised that we potentially had the experience and the expertise in a multi-partner collaboration to raise awareness about digital engagement. And so we then started to explore with patients and their carers, how they engage with health services. That all pointed to the fact that there was a journey that could be mapped out, that there were very common themes, as opposed to breaking it down into different healthcare pathways or different conditions. Looking at it from a lived experience point of view, we were very motivated by that, because quite often the starting point is the technology without considering the person.

    [On screen caption: Jessica Van Thiel – University of Sussex]

    Jessica van Thiel: I think what we've tried to achieve here is not just saying, if you're of a certain age or a certain gender, this is going to be your problem. It’s very complex and it's all very interrelated, and that's where I think the Digital Inclusion Framework is very different is because we've tried to listen to as many people as possible, and consider the overlapping variables as well. And eliminating, I think, those quite siloed approaches, we're trying to look at it in a very holistic way. And there's always going to be a certain population that really just aren't motivated to onboard new technology, but we're talking about quality of life, which will impact their health going forward. So getting it right is essential. If we don't get digital health care right it's such a missed opportunity, and so I think the implications here are massive.

    [On screen caption: Lilian – Workshop Attendee]

    Lilian: My husband has a disability, which is a benign quiver, so he shakes a lot and he doesn't use the internet much, and he doesn't have a smartphone. So I tend to do the banking, and he does tend to not have too much problems pressing buttons on his remote control for the TV. I keep telling him if anything happens to me, what would you do? And I think it might be as we're getting a bit older that he's beginning to worry about.

    Maja Golf- Papez: Technology can be a solution but technology is often also the problem, and what we don't want is that technology adds to the problems and creates new problems. And anybody is at risk to be excluded from digital health and care because they're not aware of the digital healthcare solutions or technologies or pathways. Others might be excluded in the process when they are using things and they just don't get enough support for the use, and still others might be excluded just because when they're using it, then they lose the motivation to keep using it. So these things, they cannot be a replacement of human support. So even when people submit their readings via app for the blood pressure, they will be eagerly waiting to hear back from the GP to tell them what is the next action. So this might become overwhelming for somebody and they just say I can't be bothered, so I'm not using this solution. We would like to have better technology that solves the problems and not just create new ones. So our framework won't be just like an academic tool that it's nice to look at, but it's something that can really make a difference out there in the real world.

    [End card. NHS Sussex University of Sussex, Kent Surrey Sussex Academic Health Science Network logos.]

The University of Sussex in collaboration with NHS Sussex and the Kent, Surrey and Sussex Academic Health and Science Network has developed a digital inclusion framework for health and care. 

This person-centred guide supports the design of digital services, taking into account lived-experiences and people’s needs. It considers the barriers and enablers that people face in their daily lives that affect their ability to engage with digital health and care services. This is important because research into digital exclusion shows that there are correlations between the populations more likely to be digitally excluded and those more at risk of health inequalities.

The overall aim of the framework is to enable everyone that can benefit from digital health and care to do so, when they need to, and to ensure that inaccessible pathways and technologies are not creating barriers and causing disengagement in digital health and care.

The work is continuing and the team are developing tools and resources to help NHS partners use the framework, working with innovators to embed the principals of the framework in the process of designing digital services and building up awareness with the public.  

Find our more by contacting: University of Sussex: esrc-iaa@sussex.ac.uk or NHS Sussex: sxicb.comms@nhs.net.

  • Contributors

    Project team

    Dr Maja Golf-Papez, University of Sussex
    Katherine Sykes, KSS AHSN
    Professor Debbie Keeling, University of Sussex
    Jessica Hadjis van Thiel, University of Sussex
    Dr. Ralitsa Hiteva, University of Sussex
    Nora Davies, University of Sussex

    NHS Sussex colleagues

    Virtual health and care team
    Population health and prevention team
    Digital teams
    Ageing well team
    Musculoskeletal team
    ACF PCN
    Sussex Partnership Foundation Trust
    Engagement teams
    Public reference group members
    Local authority digital inclusion teams
    Healthwatch.

    Other acknowledgements

    Kent Surrey Sussex Academic Health Science
    Network
    Participants of co-creation workshop
    Library services across Sussex
    Various NHS, VSCE, health and care, accessibility, and digital inclusion programmes and agencies
    Participants in the video.

Digital inclusion in health and care framework

The diagram below suggests that the likelihood and the nature of exclusion will differ in accordance with the individual's journey with digital health and care.

A table showing a service user's journey using digital services. Full accessible version of the table is below the image.

Download the digital inclusion in health and care framework table as a PDF [3.31MB]. You can see an accessible version of the PDF and the table above, below.

  • Accessible version of table

    The Digital Inclusion Framework for Health and Care

    Patient’s journey for digital health services/technologies

    Enablers and facilitators
    of 
    digital inclusion
    AwarenessConsiderationUse Post-use
    Access and Affordability   B. Do I have,
    or I can get,
    suitable and
    affordable access to device(s) and/or
    the internet for
    digital health
    and care?
    G. I have reliable access to the device(s) and internet whenever I need if for my digital health and care.    
    Skills and
    Support
      C. Do I have the
    necessary literacy,
    digital, and personal
    skills to effectively
    engage and/or 
    do I feel that I
    will be able to
    get support
    when I need it?

    H. I can access and interact with digital health and care safely and effectively.

    II have access to reliable, trusted, support whenever I need it.

     

     
      AAm I aware of
    the digital health
    and care service/pathway
    /technology and its
    relevance to me?
       

    Accessibility and Usability

    L. The service/pathway and technology was accessible, usable, and easy for me to interact with.

     
     
    Motivation   D. Can/do I see the
    value of this
    digital health and care service/pathway
    /technology
    and do I feel that
    it will be worth
    the effort to
    engage in it?
    J. I find digital health and care easy to use, convenient, and of personal benefit to me.   M. This service/pathway
    /technology befitted me, and motivates me to continue to use other digital health and care
    Trust  

    E.  Can/do I trust
    the service/pathway
    /technology?

    F. Can/do I trust what will happen to my data and how it will be used?

    K. I feel safe, and I feel that my data is secure.    
    N. I have the information and support I need across all aspects of the digital health service/pathway/technology (Awareness, Consideration, Use, Post Use and accessibility and usability).

    © 2022, The University of Sussex and NHS Sussex. All rights reserved. All intellectual property rights in The Digital Inclusion Framework for Health and Care are owned by The University of Sussex and NHS Sussex.

The diagram below shows the interconnected enablers that we need to consider when designing and evaluating digitally inclusive health and care pathways, services and technologies.

 A diagram of cogs showing: The cogs read (in no particular order), Access and Affordability, Skills and Digital Support, Trust, Accessibility and Usability, Motivation, and Awareness. Within the cogs, in the centre of the diagram, is a bolded cog which reads: Digital Inclusion. Around the cogs there are four arrows that say guidance and support. At the bottom of the diagram of cogs, there are four arrows, reading (from left to right), Awareness, Consideration, Use and Post/Ongoing Use. © 2022, The University of Sussex and NHS Sussex. All rights reserved.
All intellectual property rights in The Digital Inclusion Framework for Health and Care are owned by The University of Sussex and NHS Sussex.

Download the digital inclusion in health and care framework diagram as a PDF [260KB].

Contact

If you have any queries, email collaborate@sussex.ac.uk.


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