Selected publications

Article

Patra, Prasanna Kumar and Sleeboom-Faulkner, Margaret (2017) Bionetworking and strategic linking between India and Japan: how clinical stem cell intervention continues despite new regulatory guidelines. East Asian Science, Technology and Society: An International Journal. ISSN 1875-2160

Simpson, Bob and Sleeboom-Faulkner, Margaret (2017) ‘Have we become too ethical?’: International symposium at Sussex and colloquium at Durham Universities. Anthropology Today, 33 (2). pp. 32-33. ISSN 0268-540X

Sleeboom-Faulkner, Margaret, Simpson, Bob, Burgos-Martinez, Elena and McMurray, James (2017) The formalisation of social-science research ethics: How did we get there? Journal of Ethnographic Theory, 7 (1). ISSN 2049-1115

Rosemann, Achim, Bortz, Gaby, Vasen, Federico and Sleeboom-Faulkner, Margaret (2016) Global regulatory developments for clinical stem cell research: diversification and challenges to collaborations. Regenerative Medicine, 11 (7). pp. 647-657. ISSN 1746-0751

Sleeboom-Faulkner, Margaret (2016) '(East) Asia' as a platform for debate: grouping and bioethics. Kennedy Institute of Ethics Journal, 26 (3). pp. 277-301. ISSN 1054-6863

Sleeboom-Faulkner, Margaret and Chang, Hung-Chieh (2016) The private, the public and the hybrid in umbilical cord blood banking – a global perspective. New Genetics and Society, 35 (3). pp. 223-227. ISSN 1463-6778

Sleeboom-Faulkner, Margaret (2016) The large grey area between ‘bona fide’ and ‘rogue’ stem cell interventions — ethical acceptability and the need to include local variability. Technological Forecasting and Social Change, 109 (August). pp. 76-86. ISSN 0040-1625

Patra, Prasanna and Sleeboom-Faulkner, Margaret (2016) Following the banking cycle of umbilical cord blood in India: the disparity between prebanking persuasion and post-banking utilization. New Genetics and Society, 35 (3). pp. 267-288. ISSN 1463-6778

Sleeboom-Faulkner, Margaret, Chekar, Choon, Faulkner, Alex, Heitmeyer, Carolyn, Marouda, Marina, Rosemann, Achim, Chaisinthop, Nattaka, Chang, Hung-Chieh, Ely, Adrian, Kato, Masae, Patra, Prasanna K, Su, Yeyang, Sui, Suli, Suzuki, Wakana and Zhang, Xinqing (2016) Comparing national home-keeping and the regulation of translational stem cell applications: an international perspective. Social Science and Medicine, 153. pp. 240-249. ISSN 0277-9536

Rosemann, Achim and Sleeboom-Faulkner, Margaret (2016) New regulation for clinical stem cell research in China: expected impact and challenges for implementation. Regenerative Medicine, 11 (1). pp. 5-9. ISSN 1746-0751

Sleeboom-Faulkner, Margaret (2015) Translating ‘Asian’ modes of healing and biomedicine. Medical Anthropology, 34 (6). pp. 572-585. ISSN 0145-9740

Sui, Suli and Sleeboom-Faulkner, Margaret (2015) Commercial genetic testing and its governance in Chinese society. Minerva, 53 (3). pp. 215-234. ISSN 0026-4695

Sleeboom-Faulkner, Margaret and Siu, Suli (2015) Governance of stem cell research and its clinical translation in china: an example of profit-oriented bionetworking. East Asian Science, Technology and Society: An International Journal, 9 (4). pp. 397-412. ISSN 1875-2160

Fechter, Anne-Meike (2014) The ‘good’ child: anthropological perspectives on morality and childhood. Journal of Moral Education, 43 (2). pp. 143-155. ISSN 0305-7240

Hwang, Seyoung and Sleeboom-Faulkner, Margaret (2014) Bioethical governance in South Korea: tensions between bottom-up movements and professionalization, and scientific citizenship. East Asian Science, Technology and Society: An International Journal, 8 (2). pp. 209-228. ISSN 1875-2160

Wahlberg, Ayo, Rehmann-Sutter, Christoph, Sleeboom-Faulkner, Margaret, Lu, Guangxiu, Döring, Ole, Cong, Yali, Laska-Formejster, Alicja, He, Jing, Chen, Haidan, Gottweis, Herbert and Rose, Nikolas (2013) From global bioethics to ethical governance of biomedical research collaborations. Social Science and Medicine, 98. pp. 293-300. ISSN 0277-9536

Sleeboom-Faulkner, Margaret (2013) Regulating ‘respect’ for the embryo: social mindscapes and human embryonic stem cell research in Japan. Science Technology and Society, 18 (3). pp. 361-377. ISSN 0971-7218

Sleeboom-Faulkner, Margaret and Kato, Masae (2013) Ova collection in Japan – making visible women's experience in male spaces. Gender, Place and Culture, 20 (6). pp. 737-753. ISSN 0966-369X

Sleeboom-Faulkner, Margaret (2013) Competitive adaptation: biobanking and bioethical governance in China Medical City. East Asian Science, Technology and Society: An International Journal, 7 (1). pp. 125-143. ISSN 1875-2160

Sleeboom-Faulkner, Margaret and Simpson, Bob (2013) Experimental ethics: emergent themes and issues in life sciences research in Asia. Biosocieties, 8. pp. 2-6. ISSN 1745-8552

Sleeboom-Faulkner, Margaret and Patra, Prasanna Kumar (2013) Discursive dialects of bioethics: understanding the institutional embeddings of human stem cell experimentation in India. BioSocieties, 8. pp. 75-92. ISSN 1745-8552

Sleeboom-Faulkner, Margaret (2013) Latent science collaboration: strategic cultures of bioethical capacity building in mainland China's stem cell world. Biosocieties, 8 (32). pp. 7-24. ISSN 1745-8552

Sleeboom-Faulkner, Margaret and Hwang, Seyoung (2012) Governance of stem cell research: public participation and decision-making in China, Japan, SouthKorea, Taiwan and the UK. Social Studies of Science, 42 (5). pp. 684-708. ISSN 0306-3127

Sleeboom-Faulkner, Margaret and Patra, Prasanna Kumar (2011) Experimental stem cell therapy: biohierarchies and bionetworking in Japan and India. Social Studies of Science, 41 (4). pp. 645-696. ISSN 0306-3127

Sleeboom-Faulkner, Margaret (2011) Regulating Cell Lives in Japan: Avoiding Scandal and Sticking to Nature. New Genetics and Society, 30 (3). pp. 227-240. ISSN 1463-6778

Sleeboom-Faulkner, Margaret (2011) Looking beyond the regulatory exteriors of stem cell research in Asia – discussion. New Genetics and Society, 30 (3). pp. 279-288. ISSN 1463-6778

Kato, Masae and Sleeboom-Faulkner, Margaret (2011) Dichotomies of collectivism and individualism in bioethics: selective abortion debates and issues of self-determination in Japan and 'the West'. Social Science & Medicine, 73 (4). pp. 507-514. ISSN 0277-9536

Zhang, Xinqing and Sleeboom-Faulkner, Margaret (2011) Tensions between Medical Professionals and Patients in Mainland China: Issues of communication, trust and medical provisions. Cambridge Quarterly of Healthcare Ethics, 20 (3). pp. 458-467. ISSN 0963-1801

Patra, Prasanna Kumar and Sleeboom-Faulkner, Margaret (2011) Recruiter-patients as ambiguous symbols of health: bionetworking and stem cell therapy in India. New Genetics and Society, 30 (2). pp. 155-166. ISSN 1463-6778

Sleeboom-Faulkner, Margaret (2011) Stem Cell Research in Asia: Looking beyond formal regulatory exteriors. New Genetics and Society, 30 (2). pp. 137-139. ISSN 1463-6778

Sleeboom-Faulkner, Margaret Elizabeth (2011) Genetic testing, governance, and the family in the People's Republic of China. Social Science and Medicine, 72 (11). pp. 1802-1809. ISSN 0277-9536

Kato, Masae and Sleeboom-Faulkner, Margaret (2011) Meanings of the Embryo in Japan: narratives of IVF experiences. Sociology of Health and Illness, 33 (3). pp. 434-447. ISSN 0141-9889

Hwang, Seyoung and Sleeboom-Faulkner, Margaret (2011) A narrative analysis of stem cell research scientists¿ reflections on ethical issues and the value of science. Journal of the Korean Association for Science and Education, 31 (3). pp. 455-474. ISSN 1226-5187

Sleeboom-Faulkner, Margaret E (2010) National risk signatures and human embryonic stem cell research in mainland China. Health, Risk and Society, 12 (5). pp. 491-511. ISSN 1369-8575

Sleeboom-Faulkner, Margaret (2010) Eugenic birth and fetal education: The friction between lineage enhancement and premarital testing among rural households in Mainland China. China Journal (64). pp. 121-141. ISSN 1324-9347

Sui, Suli and Sleeboom-Faulkner, Margaret (2010) Choosing offspring - Case studies of prenatal genetic testing for thalassemia and the reproduction of a 'saviour sibling' in China. Culture, Health and Sexuality, 12 (2). pp. 167-175. ISSN 1369-1058

Sleeboom-Faulkner, Margaret (2010) Editorial introduction. Culture, Health and Sexuality, 12 (2). p. 137. ISSN 1369-1058

Sleeboom-Faulkner, Margaret (2010) Reproductive technologies and the quality of offspring in Asia: reproductive pioneering and moral pragmatism? Culture, Health and Sexuality, 12 (2). pp. 139-152. ISSN 1369-1058

Sleeboom-Faulkner, Margaret (2010) Contested embryonic culture in Japan - public discussion, and human embryonic stem cell research in an aging welfare society. Medical Anthropology: Cross-Cultural Studies in Health and Illness, 29 (1). pp. 44-70. ISSN 0145-9740

Patra, Prasanna Kumar and Sleeboom-Faulkner, Margaret (2010) Bionetworking: between guidelines and practice in stem cell therapy enterprise in India. SCRIPTed, 7 (2). pp. 295-310. ISSN 1744-2567

Sleeboom-Faulkner, Margaret Elizabeth (2010) Boundary making and 'good' stem cell research (SCR) in mainland China: including bioethics, excluding debate. East Asian Science, Technology and Society: An International Journal, 4 (1). pp. 31-51. ISSN 1875-2160

Sleeboom-Faulkner, Margaret and Kato, Masae (2009) Cultures of marriage, reproduction and genetic testing in Japan. BioSocieties, 4 (2-3). pp. 115-127. ISSN 1745-8552

Patra, Prasanna Kumar and Sleeboom-Faulkner, Margaret (2009) Bionetworking: experimental stem cell therapy and patient recruitment in India. Anthropology & Medicine, 16 (2). pp. 147-163. ISSN 1364-8470

Sleeboom-Faulkner, Margaret and Patra, Prasanna Kumar (2009) Informed consent in genetic research and biobanking in India: some common impediments. Genomics, Society and Policy, 5 (1). pp. 100-113. ISSN 1746-5354

Sleeboom-Faulkner, Margaret (2008) Debates on human embryonic stem cell research in Japan: minority voices and their political amplifiers. Science as Culture, 17 (1). pp. 85-97. ISSN 0950-5431

Sleeboom-Faulkner, Margaret (2008) The changing nature of ideology in the life sciences in mainland China: case-studies of human cloning and human embryonic stem cell research (hESR) in medical textbooks (1996-2005). BioSocieties, 3 (1). pp. 21-36. ISSN 1745-8552

Sleeboom-Faulkner, Margaret (2008) The Bioethical Vacuum: national policies on human embryonic stem cell research in India and China. Journal of International Biotechnology Law, 5 (6). pp. 221-234. ISSN 1612-6068

Sleeboom-Faulkner, Margaret (2007) Special symposium: predictive genetic testing in Asia: social science perspectives on the bioethics of choice. Journal of Bioethical Inquiry, 4 (3). pp. 193-195. ISSN 1176-7529

Sleeboom-Faulkner, Margaret (2007) Collecting families: an institutional approach to human genetic biobanking in Indonesia. Asian Journal of Social Science, 35 (4-5). pp. 626-656. ISSN 1568-4849

Sleeboom-Faulkner, Margaret (2007) Regulating intellectual life in China: the case of the Chinese Academy of Social Sciences. China Quarterly, 189. pp. 83-99. ISSN 0305-7410

Sui, Suli and Sleeboom-Faulkner, Margaret (2007) Commercial genetic testing in mainland China: Social, financial and ethical issues. Journal of Bioethical Inquiry, 4 (3). pp. 229-237. ISSN 1176-7529

Sleeboom-Faulkner, Margaret (2007) Social-science perspectives on bioethics: Predictive Genetic Testing (PGT) in Asia. Journal of Bioethical Inquiry, 4 (3). pp. 197-206. ISSN 1176-7529

Sleeboom-Faulkner, Margaret (2006) How to define a population: cultural politics and population genetics in the People's Republic of China and the Republic of China. BioSocieties, 1 (4). pp. 399-419. ISSN 1745-8552

Sleeboom-Faulkner, Margaret (2006) Chinese concepts of euthanasia and healthcare. Bioethics, 20 (4). pp. 203-212. ISSN 0269-9702

Sleeboom-Faulkner, Margaret (2005) The Socio-genetic marginalization in Asia programme (SMAP). IIAS Research, 38. p. 29.

Sleeboom-Faulkner, Margaret (2005) The Harvard case of Xu Xiping: Exploitation of the people, scientific advance, or genetic theft? New Genetics and Society, 24 (1). pp. 57-78. ISSN 1463-6778

Sleeboom, Margaret (2004) Avoiding harm: medical decision making and East Asian values. IIAS Newsletter, 35. p. 21.

Sleeboom, Margaret (2004) Sex selection and genetic screening in postgenomic society: scientistic and feministic blinkers. F-Gens Journal, 1. pp. 114-125.

Sleeboom, Margaret (2003) Dealing with socio-genetic marginalization in Asia. IIAS Newsletter (31). p. 49.

Sleeboom, Margaret (2003) Public health care strategies and socio-genetic marginalization. IIAS Newsletter (31).

Sleeboom, Margaret (2003) Monitored freedom: party and research reforms at CASS. China Report, 39 (2). pp. 213-227. ISSN 0009-4455

Sleeboom-Faulkner, Margaret (2003) The human idea map: a follow-up of the human genome map? Eubios Journal of Asian and International Bioethics, 13 (3). pp. 91-93. ISSN 1173-2571

Sleeboom, Margaret (2003) The limitations of the Dutch euthanasia law. Eubios Journal of Asian and International Bioethics, 13 (1). pp. 20-25. ISSN 1173-2571

Sleeboom, Margaret (2002) Stem cell research in China: an intertwinement of international finances, ambition, and bioethics. IIAS Newsletter (29). p. 49.

Sleeboom, Margaret (2002) The power of national symbols: the credibility of a dragon's efficacy. Nations and Nationalism, 8 (3). pp. 299-314. ISSN 1354-5078

Sleeboom, Margaret (2002) The power of national symbols: the credibility of a dragon’s efficacy. Nations And Nationalism, 8 (3). pp. 299-313. ISSN 1469-8129

Sleeboom, Margaret (2002) The coherent force of struggle and diversity in Chinese nationalism. Studies in Ethnicity and Nationalism, 2 (1). pp. 2-10. ISSN 1754-9469

Book

Sleeboom-Faulkner, Margaret (2007) The Chinese Academy of Social Sciences (CASS): shaping the reforms, academia and China (1977-2003). China Studies, 9 . Brill Academic Publishers. ISBN 9789004153233

Sleeboom-Faulkner, Margaret (2006) The Chinese academy of social sciences: shaping the reforms, academia and china (CASS)(1977-2003). China Studies, 9 . Brill, Leiden & Boston. ISBN 9789004153233

Sleeboom, Margaret (2004) Academic nations in China and Japan: framed in concepts of nature, culture and the universal. Nissan Institute/Routledge Japanese studies series . RoutledgeCurzon, London. ISBN 9780415315456

Sleeboom-Faulkner, Margaret (2003) Academic nations in China and Japan: framed by concepts of nature, culture and the universal. Nissan Series . Routledge/Curzon, London & New York. ISBN 9780415315456

Book Section

Rosemann, Achim, Zhang, Xinqing, Sui, Suli, Ely, Adrian and Sleeboom-Faulkner, Margaret (2017) The regulatory situation for clinical stem cell research in China. In: Phuc, Van Pham and Rosemann, Achim (eds.) Safety, ethics and regulations. Stem cells in clinical applications, 6 . Springer, Heidelberg and New York. ISBN 9783319591643

Sui, Suli and Sleeboom-Faulkner, Margaret (2016) Direct-to-consumer genetic testing in China, vital signs: medical anthropology in the 21st century. In: Manderson, Lenore, Hardon, Anita and Cartwright, Elizabeth (eds.) The Routledge Handbook of Medical Anthropology. Taylor & Francis. ISBN 9781138015630 (Accepted)

Sleeboom-Faulkner, Margaret and Sui, Suli (2016) Direct-to-consumer genetic testing in China. In: Manderson, Lenore, Cartwright, Elizabeth and Hardon, Anita (eds.) The Routledge Handbook of Medical Anthropology. Routledge, London & New York. ISBN 9781138015630

Sleeboom-Faulkner, Margaret (2014) The Harvard case of Xu Xiping: exploitation of the people, scientific advance or genetic theft? In: Dash, Jagannath, Patra, Prasanna Kumar and Satapathy, Kanhu Charan (eds.) Dimensions of healthcare systems among tribal and other communities. Utkal University, Odisha, pp. 29-61. ISBN 9789383158287

Sleeboom-Faulkner, Margaret and Patra, Prasanna Kumar (2012) Informed consent and benefit sharing in genetic research and biobanking in India: some common impediments in practice. In: Dabrock, Peter, Taupitz, Jochen and Ried, Jens (eds.) Trust in biobanking. dealing with ethical, legal and social issues in an emerging field of biotechnology. Springer, London & New York, pp. 237-256. ISBN 9783540788447

Sleeboom-Faulkner, Margaret (2010) Discussion: Predictive and genetic testing in Asian and international contexts. In: Sleeboom-Faulkner, Margaret (ed.) Frameworks of choice: predictive & genetic testing in Asia. International Institute for Asian Studies Publications, Edited Volumes, 3 . Amsterdam University Press, Amsterdam, Holland, pp. 223-234. ISBN 9789089641656

Sleeboom-Faulkner, Margaret (2010) Embryo controversies and governing stem cell research in Japan: how to regulate regenerative futures. In: Ong, Aihwa and Chen, Nancy N (eds.) Asian biotech : ethics and communities of fate. Duke University Press, pp. 215-238. ISBN 9780822347934

Sleeboom-Faulkner, Margaret (2010) Frameworks of choice: the ramification of predictive and genetic testing in Asia. In: Sleeboom-Faulkner, Margaret (ed.) Frameworks of choice : predictive & genetic testing in Asia. Amsterdam University Press, pp. 11-26. ISBN 9789089641656

Sui, Suli and Sleeboom-Faulkner, Margaret (2010) Genetic testing on Duchenne muscular dystrophy in China: vulnerabilities of Chinese families. In: Sleeboom-Faulkner, Margaret (ed.) Frameworks of choice: predictive & genetic testing in Asia. Amsterdam University Press, pp. 167-182. ISBN 9789089641656

Patra, Prasanna Kumar and Sleeboom-Faulkner, Margaret (2010) Population genetic screening for sickle cell anaemia among the rural and tribal communities in India: The limitations of socio-ethical choice. In: Sleeboom-Faulkner, Margaret (ed.) Frameworks of Choice: Predictive & Genetic Testing in Asia. Amsterdam University Press, pp. 65-90. ISBN 9789089641656

Sleeboom-Faulkner, Margaret (2009) Biobanking in transnational perspective. In: Döring, Ole (ed.) Ethical governance of biological and biomedical research: Chinese-European co-operation (Second edition). Bionet, pp. 28-32.

Sleeboom-Faulkner, Margaret (2009) Collecting families: an institutional approach to human genetic biobanking in Indonesia. In: Human Genetic Biobanks in Asia: Politics of trust and scientific advancement. Routledge Contemporary Asia Series (12). Routledge, London, pp. 117-141. ISBN 9780710313416

Patra Kumar, Prasanna and Sleeboom-Faulkner, Margaret (2009) The Indian genomic biobank initiative and emerging bioethical issues: a community based perspective. In: Sleeboom-Faulkner, Margaret (ed.) Human Genetic Biobanks in Asia: Politics of trust and scientific advancement. Routledge, pp. 151-167. ISBN 9780710313416

Sleeboom-Faulkner, Margaret (2009) Introduction: Human genetic biobanking in Asia: issues of trust, wealth and ambition. In: Sleeboom-Faulkner, Margaret (ed.) Human genetic biobanks in Asia: politics of trust and scientific advancement. Routledge Contemporary Asia Series, 12 . Routledge, pp. 3-24. ISBN 9780710313416

Sleeboom-Faulkner, Margaret (2008) National bias in identity construction: examples of academic grouping in East Asia. In: Tankha, B (ed.) Okakura Tenshin and Pan-Asianism: shadows of the past. Global Oriental, London & Calcutta, pp. 152-181. ISBN 9781905246618

Sleeboom-Faulkner, Margaret (2006) Sampling policies of isolates of historical interest: the social and historical formation of research populations in the People's Republic of China and the Republic of China. In: New Genetics, New Social Formations. Routledge, pp. 155-167. ISBN 9780415393232

Sleeboom-Faulkner, Margaret (2004) Gender in the post-genomic era. In: Tsuge, Azumi (ed.) Rethinking science and medicine from the perspective of gender in the post-Human Genome Project era. F-GENS publication series (2). Project C-3 of "Body, Medical Care, Science & Technology" Research Group, the 21st Century COE Program, Frontiers of Gender Studies, Ochanomizu University, Tokyo.

Sleeboom-Faulkner, Margaret (2004) Socio-genetic marginalization in Asia. A plea for a comparative approach to the relationship between genomics, governance, and social-genetic identity. In: Árnason, Gardar, Nordal, Salvör and Árnason, Vilhjálmur (eds.) Blood & data : ethical, legal and social aspects of human genetic databases : published for the International ELSAGEN Conference, University of Iceland, Reykjavík, 25-28 August 2004. University of Iceland Press, Reykjavik, Iceland, pp. 39-44. ISBN 9789979545934

Edited Book

Sleeboom-Faulkner, Margaret, ed. (2014) Stem cell research in Asia: looking beyond formal regulatory exteriors. Routledge. ISBN 9781138829312

Sleeboom-Faulkner, Margaret and Simpson, Bob, eds. (2013) Experimental ethics. BioSocieties, 8 (1). Palgrave MacMillan, Basingstoke.

Sleeboom-Faulkner, Margaret, ed. (2010) Frameworks of choice: predictive & genetic testing in Asia. IIAS publications series. Edited volumes, 3 . Amsterdam University Press. ISBN 9789089641656

Sleeboom-Faulkner, Margaret, ed. (2009) Human genetic biobanks in Asia : politics of trust and scientific advancement. Routledge contemporary Asia series . Routledge. ISBN 9780710313416

Sleeboom-Faulkner, Margaret, ed. (2004) Genomics in Asia: a clash of bioethical interests? Kegan Paul. ISBN 9780710309433

Edited Special Journal Issue

Sleeboom-Faulkner, Margaret and Fechter, Anne-Meike, eds. (2014) The 21st century gift. Anthropological Forum, 24 (4). ISSN 0066-4677

Sleeboom-Faulkner, Margaret, ed. (2010) Quality of offspring—the impact of new reproductive technologies in Asia. Culture, Health and Sexuality, 12 (2). ISSN 1369-1058

Reports and working papers

Sleeboom, Margaret (2009) Genomics in Asia: the clash of bioethical interests. Unset. IIAS.